Privacy Policy

This privacy policy sets out how the Thalidomide Society uses and protects any information that you give to the Thalidomide Society when you use this website and for membership, archival and project purposes.

The Thalidomide Society is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified, then you can be assured that it will only be used in accordance with this privacy statement.

The Thalidomide Society may change this policy from time to time by updating this page. You should check this page to ensure that you are happy with any changes. This policy is effective from May 2018.

What we collect

We may collect the following information:


Contact information including email address and telephone number/s

Demographic information such as postcode and address if you prefer us to write to you

       Photographs or other archival material

All contact information gathered will be stored on the secure Thalidomide Society database until you or someone acting on your behalf requests it to be removed. Only the Secretary to the Board of Trustees of the Thalidomide Society and appointed Society staff will have access to this database. The database is backed up on two external hard drives.

What we do with the information we gather

We require information to understand your needs and to provide you with a better service, and in particular for the following reasons:

Internal record keeping: the Society processes, collects and uses personal data for the purpose of archiving in the public interest. 

We may use information you share with us to improve our services. We may use information you choose to share with us to customise the website according to your interests.

From time to time, we may also use your information to contact you for research purposes. We may contact you by email, phone or mail unless you have told us you do not wish to be contacted. 

Links to other websites

Our website contains links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.

Controlling your personal information

We will not sell, distribute or lease your personal information to third parties. We may use your personal information to contact you from time to time as part of the normal business of the Thalidomide Society.

You may request details of personal information which we hold about you at any time. If you would like a copy of the information held, please email

If you believe that any information we are holding on you is incorrect or incomplete, please email us as soon as possible, at the above address. We will promptly correct any information found to be incorrect.