My name is Mandy de la Mare and this is a picture of me in my new front garden amidst a pile of rubble, old carpets and other parts of my new home now being majorly overhauled. I have recently joined the board of trustees for the Thalidomide Society. I have been a member of […]
Author: Ruth
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The Guy with the Van
An Interview with Guy Tweedy about his campaign van Guy was born in Darlington in June 1962; lived in Newcastle from 1963-1970 and then moved to Harrogate in North Yorkshire where he has been ever since. Guy is a familiar face in the thalidomide community as he is the longest serving member of the NAC […]
Louise Medus-Mansell (1962-2018)
Louise was born on 23rd June, 1962 at Chase Farm Hospital in Enfield, London. She died on 7th November, 2018 at Churchill Hospital, Oxford. Born with no arms and legs, due to the effects of the drug thalidomide which Louise’s mother took during pregnancy, Louise spent much of her early life at Chailey Heritage Craft […]
The Thalidomide Society wins National Lottery Support!
Thalidomide Stories: an Oral History of Thalidomide Survivors The Thalidomide Society has received National Lottery support from the Heritage Lottery Fund (HLF) for Thalidomide Stories – an Oral History of Thalidomide Survivors. Thanks to National Lottery players, the project will capture the voices of at least 46 thalidomide survivors over the course of […]
Skew-Whiff: An Asymmetric Memoir by Cas Bulmer
I have been working at writing my memoir for several years now and have attended several courses with the Arvon Foundation and The Guardian/UEA to try to improve my skills. My aim is to tell the story of the impact of three Distaval tablets on my whole family, particularly my parents. Whilst pulling in the […]
Conferring – a Two-Way Process: Reflections on the 2018 Thalidomide Society Conference
By Brian Payne, Trustee of the Thalidomide Society. In a previous life I was a conference organiser. These were mainly conferences about the early internet and other communications technologies – indeed my first, over 30 years ago, was on mobile phones. I was the proud user of one of those ‘bricks’… not much like the iPhone. […]
Taking Control of the Narrative
A review of Martin Johnson’s book, The Thalidomide Catastrophe by Geoff Adams-Spink (Chair of the Thalidomide Society) This is our story; it’s the story that we all know bits of, the story that sometimes gets exaggerated, muddled, or confused in the telling and retelling; it’s the story that we want others to read after we […]
Thalidomide Society trustee Kath West on school governance
By Kath West, Trustee of the Thalidomide Society and thalidomide survivor. I gave up working for health reasons when our boys were still at infants and junior school. My back was very bad at the time and I found it difficult getting out and about. Once my back problem started improving I was left […]
Thalidomide Society members make a huge difference to a Cambodian teenager
Srey Hang is a 15-year old girl living with her extended family in a typical Cambodian house on stilts, 10kms from the Thai border. She was born with extremely shortened arms, no hands or fingers and an absence of lower limbs, making her dependent upon her family for washing and hygiene, feeding and general mobility. […]